July 2023

ALS, terminal, fatal, incurable, hopeless, and devastating. All of these words are synonymous with ALS. There is one more that has a profound effect on living with this horrible disease… Technology. To cure ALS medically is not economical. The realities are that it’s difficult to find funding for research for a medical cure. I believe Read more

What do you possess that matters most and is of greatest value? Material things?Wealth?Property?Heirlooms?Art? Yes they all hold “value”, in the world at large. Do you possess them, or are they in your possession? I know, existential semantics. Truly the only things that each of us possess are time and thoughts. When we cease to Read more

Depending on your personal beliefs, saying goodbye could mean, see you later, see you again, or never see someone again. None can be discounted because it’s a deeply personal matter. Regardless of this, saying goodbye is extremely difficult and, yes, also very personal. Living with ALS, if you do, in fact, live beyond the typical Read more

You know that saying; “what matters is not the year you were born or died but the dash in between”…well that’s what I saw last night, when Ales for ALS and Alamo Beer Company released a beer named after Juan. It’s called Juan-dering IPA, and the number of people that came to support estimated about Read more

Last night, 8 July 2023,was epic! Ales for ALS, in collaboration with Alamo Brewing Co., San Antonio, TX, held a beer release. Humbled by the outpouring of love and support, I was overwhelmed, truly. This was topped off by the refreshing and delicious Juan-dering IPA created by the brewery. The following are a few words Read more

I know it’s silly to wordplay with my name as I share my personal journey with ALS. Some, I’m sure, don’t appreciate it, but it is who I am. By doing so, you are made aware that I don’t take myself too seriously, although what I share can, at times, be very serious and painful. Read more