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For many that are facing a terminal condition, once the diagnosis and future prognosis sets in, the question then becomes, what now? The simple task of leaving the house, once progressed to a wheelchair, can be daunting. This is why so many find it easier to just not venture beyond the front door. Yes I Read more

A Short Story by TJO Hi, my name is John, and I’d like to introduce you to my friend Fred. Where should I start? Well, I guess I should introduce myself first. You see I have ALS, I’m pretty sure I’m also at the end of my journey. I am unable to move, breath or Read more

“The warm embrace of solitude, is an illusion. It falsely shields you from the life you deny yourself and your loved ones.” TJO This one may ruffle a few feathers, but I believe it needs to be shared. However, I will reiterate that what I write is my personal perspective. Choosing to isolate yourself when Read more

What is this “it” you speak of TJO? Well, thanks for asking friend. What I speak of is, to be honest, is progression of my condition. For man, ALS can be unrelenting in its consumption of life, taking daily, until there is but ones last breath to steal from us. For some like me, it Read more

I am sharing this piece I wrote for alsthewritestuff.com. https://www.alsthewritestuff.com/post/traveling-with-als-and-other-disabilities Read more

Village, tribe, flock, whatever you call it, once you find it… it’s yours. Such is our ALS village, it is where I currently reside, Meg even calls me its mayor, affectionately. Regardless, this community loves hard, and is extremely protective. Yes, it is a village no one wishes to reside in, unfortunately it keeps growing. Read more

Hamilton, in the Broadway production, is said to be writing like he’s running out of time. There are periods when I feel this exact ticking of time; the hour glass is slowly draining, one grain at a time. This is dedicated to all who feel this… I am writing my life, one verse at a Read more

Perspective is critical, when confronted by challenges and obstacles. This trip has definitely presented us with a slew of those recently. And if Meg and I were easily swayed by adversity, we would have never left our home after my diagnosis. But we are not, so what to do? Our choice is to reframe our Read more

Fanatical is the word that comes to mind when describing the ALS TDI Tri-State Trek. Well, not the event, but the people, yes the participants! But it doesn’t stop there, oh no, the cheer squad, oh boy, the cheer squad! Led by the incomparable Glynis Murray. It starts very early in the morning, definitely before Read more