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Recently, during a Zoom meeting of life-minded individuals, writers; each of us personally touched by ALS. A poem was shared about allowing oneself to be comfortable shining your inner light. This turned into a discussion about sparkle, a person’s sparkle. But what is sparkle? It is, in essence, the energy one emmits that lights a Read more

We are, I am, You are… much much more than our appearance. I am not deaf because I’m in a wheelchair! I’m not mentally challenged because I am in a powerchair! Although my condition is challenging, mentally. I’m not blind because I am in need of assistance, but I do see your ignorance! I am Read more

The miles are adding up for this trip. Since we left on May 19th, we’ve added over 200 miles… to my wheelchair. Oh, were you thinking the RV? I’ll have to ask Meg what the mileage is on Big Blue now. Stand by… 26383 miles. May of last year, when we bought it, it had Read more

Departure routine for Meg, as we travel: At first, it took a good hour or so to accomplish the tasks above. Meg has it down to about 30 minutes. She can actually disconnect or set up in about 10-15 minutes if that’s all she’s doing. Yes, you should be impressed. Why? Because Meg has always Read more

Run, run, run. Do, do, do. Got to get it done. Why? Why do we run ourselves ragged? I’m not talking about work, school, or essential things that need to get done. I’m talking about the other stuff we pile on ourselves, that DIY project, the millions of other things we have on “The List.” Read more

Before I lose the ability to say this, I want to say it now to my family. Especially my wife Meg. But I also wish to say this on behalf of others who may not be able to. As a Caregiver, to me, you did everything humanly possible. At times, your strength astounded me. Matched Read more

You have ALS… Disappear.Go home and die.Get your affairs in order. No, I will not! The statements above are harsh, but they are true. Or at least they were. Slowly, this is changing, as the ALS afflicted gain their voices in the prognostic conversations. “Yes, it’s terminal, but I will find a way to live Read more

AKA Troy Fields! This gentleman and his wife Terry graced us with a visit at the RV park in Tampa, FL. I first met Troy via Zoom in preparation for a Hispanic Heritage Month ALS Awareness event last year. I had, in fact, heard of him participating in other I AM ALS teams. Since then, Read more

My daughter Kristen has a very special place in her heart for felines. Or, as I call them four-legged fickle critters. She can’t stand to see them abandoned or neglected. This past Saturday, Meg and I stayed overnight at a Harvest Host location: https://harvesthosts.com. The Golden Oldies Retirement Home for Cats, Dogs and Horses (and Read more

Adventures in RVing with Meg. Yesterday, as Meg and I prepared to meet a colleague of hers. We were ready to hit the road. All we needed was to load me up in the truck. Keys, where did I put the keys? Hm… where are they? Juan, have you seen the keys? What ensued is Read more