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ALS is often referred to as a disease where you lose someone gradually, but they are still present. Still here, just physically challenged. What do you do when ALS strikes not just the body but the mind as well? Not only do you lose the physical person, but you also lose their essence as a Read more

Where ALS goes to take a breath… From the driveway, you see a home on piers on the edge of a lake. However, the heart and soul of this very special place is what makes it stand out from ordinary vacation rentals. John-boy’s Place, created by Leslie Stewart Gafford, in memory of her husband, John Read more

This is a speech I presented yesterday to Siemens Energy for ALS Awareness Month. At the invention of Alberto Schirmer, an employee and fellow ALS’er. We met at the inaugural Lou Gehrig Day in Houston. Thank you, Alberto, for the opportunity! Good morning, and thank you for allowing me to share my life with ALS Read more

Interesting word “plumage”, a birds feathers, collectively. Birds of a feather flock together, meaning like-minded individuals usually find each other. A flock, a group of birds, often used to refer to a close-knit group, synonymous with family and friends. Plumage is also the foundation for a “Boa.” Yes, a boa, a feather boa,that is. A Read more

Today, Meg and I had the privilege and honor to attend the 2023 Commencement of The Texas A&M School of Pharmacy. It was an incredible experience to witness the culmination of many years of hard work. I am especially proud of the fact that I Am ALS had a slight part in their education. In Read more

If you followed our travels last year, you know Meg gets herself in precarious situations with the RV. Normally, she drives a Mini. She also drives my truck. And she drives the 35-foot Big Blue, with my truck in tow. However, this is what went through her mind today…”ooh, it’s drink one for Dane at Read more

Tomorrow, we will celebrate the graduation of this year’s graduating class of Doctor of Pharmacy from A&M. Graduating will be a very special young lady in our lives, Aisha Landeros. We have been on the sidelines cheering her on, along with Nathan, our son, and her family. To say that we are eff*** proud of Read more

As Meg finishes the prep of Big Blue,I reflect on the strength and courage she embodies. Venturing across this beautiful nation of ours, with me in tow. I am in awe and head over heals for her. How could I not be? These trips are a way for us to spend time together, create memories, Read more

Well folks, our next adventure begins, May 19th. This time we will be traversing across the southern states down to the Florida Keys and then scoot on up to Niagara Falls. Wish us luck and take a look at the itinerary, to see if we can arrange meeting you as we pass through. Be patient Read more