grief
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Living with ALS — amyotrophic lateral sclerosis — is a journey unlike any other. It’s a reality that brings many questions, many emotions, and sometimes, a profound sense of uncertainty. What does it mean to live with this disease? Am I just existing? Am I simply waiting to die? Or am I still creating memories, Read more
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As my ALS progresses, I feel myself slipping away, unraveling thread by thread until all that remains is a fragile skeleton of who I once was. The disease is a slow eraser, wiping away the colors of my body, leaving behind a stark, hollow outline—a skeleton me. Each day, I watch parts of myself fade Read more
Life On The Road with ALS 