love
-
Living with ALS — amyotrophic lateral sclerosis — is a journey unlike any other. It’s a reality that brings many questions, many emotions, and sometimes, a profound sense of uncertainty. What does it mean to live with this disease? Am I just existing? Am I simply waiting to die? Or am I still creating memories, Read more
-
ALS may be silencing my voice, but in this quietude, a magnificent chorus begins to rise — the chorus of my soul. It is a song of hope and peace, transforming the silence into a powerful opus that tells the story of a life richly blessed by love, acceptance, joy, and yes, even pain. This Read more
-
The Battle Against ALS I don’t fear death as much as I fear not living the life I have been given. Every day is a relentless struggle to hold death at bay, through sheer determination and yes, with a good dose of respect for the reaper himself. He has bestowed upon me this burden called Read more
-
The journey of being diagnosed with ALS is profoundly heartbreaking, an agonizing experience marked by the harrowing anticipation of one’s own demise. This is compounded by the pain our loved ones will also experience. The moment the diagnosis is uttered, it is as though the ground beneath shatters, leaving one to grapple with the imminent Read more
Life On The Road with ALS 