Life On The Road with ALS

ALS Advocacy One Mile at a Time

poetry

  • Skeleton Me

    As my ALS progresses, I feel myself slipping away, unraveling thread by thread until all that remains is a fragile skeleton of who I once was. The disease is a slow eraser, wiping away the colors of my body, leaving behind a stark, hollow outline—a skeleton me. Each day, I watch parts of myself fade Read more

  • A Celebration of the Soul’s Chorus

    ALS may be silencing my voice, but in this quietude, a magnificent chorus begins to rise — the chorus of my soul. It is a song of hope and peace, transforming the silence into a powerful opus that tells the story of a life richly blessed by love, acceptance, joy, and yes, even pain. This Read more