Life On The Road with ALS

ALS Advocacy One Mile at a Time

writing

  • Skeleton Me

    As my ALS progresses, I feel myself slipping away, unraveling thread by thread until all that remains is a fragile skeleton of who I once was. The disease is a slow eraser, wiping away the colors of my body, leaving behind a stark, hollow outline—a skeleton me. Each day, I watch parts of myself fade Read more

  • Living with Death as a Bedfellow

    The Battle Against ALS I don’t fear death as much as I fear not living the life I have been given. Every day is a relentless struggle to hold death at bay, through sheer determination and yes, with a good dose of respect for the reaper himself. He has bestowed upon me this burden called Read more