ALS may be silencing my voice, but in this quietude, a magnificent chorus begins to rise — the chorus of my soul. It is a song of hope and peace, transforming the silence into a powerful opus that tells the story of a life richly blessed by love, acceptance, joy, and yes, even pain. This is the melody of moments and memories that culminate in a vision of a glorious life — a life that shines brightly, in spite of ALS.

As my ability to speak fades, the silence is not empty; it is filled with the music of my soul. The absence of words creates space for the deeper harmonies of my spirit to emerge. Each thought grows clearer, each feeling resonates more fully, and the song of my life unfolds with vibrant clarity.

This quiet is not a void but a stage — a place where the body’s limitations invite the spirit to take the lead. The soul’s chorus swells, weaving together threads of hope, peace, and resilience into a tapestry of sound that sings louder than any voice ever could.

The song of my soul is no mere background hum; it is an opus — a grand, sweeping score that celebrates every note of my journey. It honors the laughter and tears, the triumphs and trials, the moments of joy and the lessons of pain. Each memory is a melody, each experience a rhythm, coming together to create a symphony that is uniquely mine.

ALS may challenge my body, but it cannot touch the music within. The soul’s song is a testament to the richness of a life lived fully and deeply, a life that continues to inspire and uplift even in the face of adversity.

This chorus is a beacon, a light that shines through the darkness. It reminds me — and all who listen — that even when words fail, the soul’s voice is powerful beyond measure. It sings of acceptance, of gratitude, and of an unwavering hope that carries me forward.

In this celebration of the soul’s chorus, I find strength and joy. I embrace the silence as the space where my true song is heard, loud and clear. And in this song, I discover the glorious truth: that life, in all its complexity, is a masterpiece worth celebrating — in spite of ALS.

Even as my own song approaches its final bars, my heart overflows with unwavering hope — not just for myself, but for all others fighting this devastating disease. Why? Because my soul’s song is not alone. ALS is not a solo; it is a symphony, composed by many souls, each bringing its own urgent, powerful melody.

This anthology of lives, each battling to live fully and fiercely, creates a rich, complex harmony. Every voice adds depth and strength, every melody carries a story of courage, love, and resilience. Together, these songs weave a collective narrative that is far greater than any one individual’s journey.

In time, this evolving symphony will become an anthem — a rallying cry of hope, healing, and breakthrough. This anthem is called REMEDIUM. It represents the shared determination of countless souls united in the fight against ALS. It is a promise that through collaboration, innovation, and relentless spirit, a remedy will emerge. So, as my song nears its close, I sing with joy knowing that the music continues — louder, stronger, and more vibrant than ever. The symphony of ALS warriors will rise, and together, we will transform this anthology of struggle into a triumphant anthem of victory.

Our voices, united in REMEDIUM, will echo through time — a testament to hope, resilience, and the unbreakable spirit of humanity.

TJO